Thursday 25 July 2013

Yay youth tomorrow!!!!!!!!!!!

Yay dancing with youth tomorrow!!!!!! We are practising for our disco because we are doing a performance!!!! We are going to be dancing for three youth sessions then the disco will be after the lessons yaya!!!!!!

Sunday 21 July 2013

Earthquake madness!!!!!!!!!!!

In Wellington this weekend has been having quite a lot of earthquakes!!!!!!!!!!!!!!!! We recently had a huge one at 5.09pm tonight it went on for more than a minute!!!! I was in the room on my own then suddenly a huge earthquake hit. I think it was 6.5 magnitude.I hope everyone in Wellington are safe and are feeling ok now.Pray that the earthquakes will stop soon!!!!!

Tuesday 16 July 2013

Baby Jireh part2!!!!! Race to taste!!!!!!

Baby Jireh came to the movies today!!!!! We raised 400 and something dollars!!!!!!!!!! Baby Jireh is hopefully going to be learning to eat soon!!!!!Photo: If she does this to you, it means give her a kiss lol We've been so greedy with her over the Christmas period...Reflecting on 2012,chilling at home just enjoying her...there's no doubt about the favour of God on her journey :) We've found ourselves saying 'babe babe come look at Jireh'...she does the funniest things, something new everyday.Wishing everyone an awesome rest of the year...looking forward to 2013!!!Photo: We really want Jireh to eat food and not have to rely on her feeding pump and milk...we've been in touch with a few Mums in NZ who have seen a specialist from Germany who weans kids off these types of tubes!!!Apparently it costs about $20k and he is possibly coming to NZ in September so we're looking further in to this..Not sure on exact details but surely the ministry of health or someone might like to jump on board and get other kids off the tube too :) Shes still booked in for April 19th to get the PEG surgery done..Shes no longer eating yogurt but likes to try different flavours of different foods...here she is experimenting with a pear :)Photo: This baby has been full on :) Appointments started already...shes been to a wedding, a 1st birthday, shes had her first swim..trying a lot more flavour of foods but not quite chewing just yet...shes so so special...love every minute with her xxx
Baby Jireh has C.H.A.R.G.E Syndrome Which contributes to complications with her feeding,vision,heart,hearing and developmental growth.Her family and friends raised $50.000 to get x2 cochler implants so that she can hear.She also wears a contact in her left eye,has a heart mumur and absent balance nerves.Her family are pleased at her progress this far and look forward to seeing her eat!!!!!

Jireh Winiata has been fed via tube for the last two years,relying on milk for her growth.After not having sufficient weight gain at four days old,test results came back a week later to say everything was functioning properly however Jireh was uncoordinated.Being discharged from hospital a month later,Jireh has since relied on this avenue of intake.

Her family have been in touch with a specialist in Germany who has agreed to see Jireh in september this year to help her eat and not have to rely on the feeding pump every 3hours.Markus Wilken, from Austria,specializes in 'tube weaning' and has worked with hundreds of children including 2 from Nz recently.

The total estimated cost for this process is approximately $15.000 NZD.There are a few families throughout Nz and Australia trying to get government support so that the financial burden is lifted from families who want their child/ren to eat 'normally'. You are so GORGEOUS BABY JIREH!!!!!!!!!!!!!!

Monday 15 July 2013

Notes about me!!!!!!!!

Name:Mercedes
Nickname:Mena (My saints name is Philomena, so thats why peps call me Mena)
Mums name:Keli
Best friends:Janayah,Alofa, (more but i cant remember all of them at one time because it gets way too confusing!!!)
Fav song:Dont have one i love all music except rock and heavy metal!!!!!
Fav colour:Purple
Fav food:Anything except seafood.
Siblings:Lesieli(17)Alize(6)Amaris(1)
School:Sacred Heart Petone
What college i want to go to:Wellington Girls!!!!



Baby Jireh Race to taste!!!!!!!!!

Photo: Something cool to do these holidays and it supports a great cause :-)

Baby Jireh!!! Race to taste!!!!

Photo: We've been a bit absent on here BUT just a quick update on Jireh: She's almost walking!she needs to be assisted and guided a little but shes almost got it...shes trying different tastes for foods and as she gets older, shes starting to like things she never use too e.g. fruity yogurts,sitting on her couch, holding babies...Next week she officially starts Play Center twice a week so we're excited that she'll be able to learn off other kids...She was so good during this movie so looks like we'll be going back :)Photo: We went to visit the wonderful children at kids on foot today who are doing x2 movie fundraisers for Jireh. They all learnt more about her needs & she absolutely loved her time there ( didn't want to leave :) we look forward to seeing them all tomorrow :)
Baby Jireh was born deaf.Last year they raised 50k for baby Jireh to get a cochler implant!!!! This year we are trying to raise 15k for Baby Jirehs rase to taste. So far they have raised 900o.6000 more then she will be able to eat instead of having to put a tube down her nose to go through to her stomach.Baby Jireh cannot see out of her left eye.Tomorrow we are doing a fundraiser for Baby Jireh at the lighthouse in petone because we are watching Monsters university!!! The doctors said that baby Jireh wouldnt be able to walk but she is starting to make a few steps which is great.Baby Jireh cant really talk either, all she can say is mum or dad.Jireh used to do sign language to communicate with her parents but now that she knows what sounds are she is starting to talk.Baby Jireh is 2 years old,and as you can see by the pics above she is totally adorable!

Dynamite youth Friday night!!!! pyjama jammy jam party!!!!!!

PhotoPhotoPhoto: Dynamite Youth....Pyjama Jammy Jam!PhotoPhoto: The girls took on the boys in a dance comp....and SMASHED IT! Better luck next time boys :-)Photo

Monday 8 July 2013

Me and my siblings!!!!



This is a picture of me and my two younger siblings Amaris and Alize. I also have an 17 year old older sister her name is Lesieli. This is what we do in our spare time.We have so much fun!!!!

First marching practise!!!!

Yesterday i had my first marching practise for the season.Unsurprisingly i am the tallest in my team!!!! I was really excited to start the new season.This season i have to step up and help the coaches train the little ones because i am now an old girl that has been in the team for 3 seasons.I am really excited because this nationals is going to be in Wellington but we have to practise hard because we are representing Wellington and we cannot give away the championship title to another team that has come to wellington.We want to keep our championship title for as long as we can!!!!

Book review!!!!

I am so happy that i have finished this book i have been reading this week.It is called The day after forever.It is a really sad book but i still like it because even though it is a sad book it is a really good book.It is about these four friends Eddie,Jeff,Toni and Courtney. Eddie is classed as the handsome boy in the book, Eddie is best friends with Jeff that is dying of Leukaemia.Toni is loud and really outgoing but recently in the book lost her twin brother which was really hard for her because they were really close.Finally Courtney, Courtney is being abused by her stepfather and she has a really hard life. The four friends end up going to a lodge with Jeff because Jeff wants to be at the lodge where his parents past away, so Jeff can be close to his parents when he dies.Toni doesnt know but halfway in the book finds out and she is devastated.Near the end of the book Jeff has to break the news to Courtney. Courtney and Jeff are really close throughout the book so Jeff doesnt know how to tell her without hurting her but eitherway she still got really upset.Near the end Courtney found out and was really upset.At the end it was sad because they were all in the hospital room and the three friends were gathered around the hospital bed spending time with Jeff for his last few minutes of his life.Eventually Jeff pasted away it was really sad i almost cried.

Rating 10/10

Author:Erin Skiffington
Erin was 14 when she wrote this book.

The book im going to try finish in a week that i am going to start now is the Hunger games!!!! I have heard it is a great book to read. I have seen the movie so i hope it is as good as the movie.I hope i finish it in one week like i finished The day after forever in one week.

Wednesday 3 July 2013

St Bernards science visit

Yesterday St Bernards came to our school to teach us some science.It was really interesting to learn about volcanoes,how earthquakes are caused and lots more.I had an awesome time because i love learning new things, especially if its science because science has always looked interesting.I really liked learning about what happens underground.I hope they come again because i had so much fun!!!!!