Baby Jireh part2!!!!! Race to taste!!!!!!

Baby Jireh came to the movies today!!!!! We raised 400 and something dollars!!!!!!!!!! Baby Jireh is hopefully going to be learning to eat soon!!!!!
Baby Jireh has C.H.A.R.G.E Syndrome Which contributes to complications with her feeding,vision,heart,hearing and developmental growth.Her family and friends raised $50.000 to get x2 cochler implants so that she can hear.She also wears a contact in her left eye,has a heart mumur and absent balance nerves.Her family are pleased at her progress this far and look forward to seeing her eat!!!!!

Jireh Winiata has been fed via tube for the last two years,relying on milk for her growth.After not having sufficient weight gain at four days old,test results came back a week later to say everything was functioning properly however Jireh was uncoordinated.Being discharged from hospital a month later,Jireh has since relied on this avenue of intake.

Her family have been in touch with a specialist in Germany who has agreed to see Jireh in september this year to help her eat and not have to rely on the feeding pump every 3hours.Markus Wilken, from Austria,specializes in 'tube weaning' and has worked with hundreds of children including 2 from Nz recently.

The total estimated cost for this process is approximately $15.000 NZD.There are a few families throughout Nz and Australia trying to get government support so that the financial burden is lifted from families who want their child/ren to eat 'normally'. You are so GORGEOUS BABY JIREH!!!!!!!!!!!!!!